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Lassa fever: not only a neglected disease, but neglected patients too

23 Feb 22

February 23rd, 2022- “Everything felt strange,” says 14-year-old Nneoma Okonogha, who was treated for Lassa fever – a virus transmitted to humans through contact with food or household items that have been contaminated by rodents. “I thought I was really in a nightmare.”

Viral fever

Once a person is ill with Lassa fever, they can pass it on to others should they contact the infected person's body fluids.

Nneoma, along with her sister, Ukamaka and their mother, Priscilla, caught the viral haemorrhagic fever at the same time.

Priscilla with her two daughters- contracted lassa fever. (October, 2021).

All three of them were treated at the Alex Ekweme University Teaching Hospital in Abakiliki (AE-FUTHA), Ebonyi State, Nigeria.

Severe outbreak

“It was so severe that when the children were shouting in pain, I couldn’t help them because I was also down with pain,” says Priscilla, who also works at the hospital as a civil servant.

In Nigeria, Lassa fever is endemic – cases are found and reported almost every year.

MSF health promoters, Joseph Ibeabuchi (male) and April Ozibo Chinezon (female) educating the public about lassa fever in Abakaliki, Ebonyi State, Nigeria. (October, 2021).

But after a severe outbreak in 2018, when more than 600 people were confirmed to be infected, and 171 people died, the World Health Organization deployed a team of specialists from the Nigerian Centre for Disease Control (NCDC) and Nigeria Field Epidemiology and Laboratory Training Program (NFELTP) to several states including Ebonyi.

Lassa treatment centre

In March 2018, Médecins sans Frontières (MSF) started supporting the Lassa treatment centre at AE-FUTHA. Since then, our teams have been working closely with the Ministry of Health (MoH) to treat patients suffering from Lassa fever.

Creating awareness about the disease to stop the spread and reduce the stigma towards patients of the disease. (October, 2021).

The treatment has proven pertinent for the community, with over 15 patients treated for Lassa fever at the Abakaliki project in the first month of 2022 alone.

Shocked to the bone

Across Nigeria, there have been a total of 115 confirmed cases and 26 deaths throughout 30 local government areas in 11 states of the country.

"It was so severe that when the children were shouting in pain, I couldn’t help them because I was also down with pain” says Priscilla, who also works at the hospital as a civil servant"

[priscilla][works as a civil servant in ebonyi state, nigeria]

“I contracted Lassa fever in February 2021. When I tested positive, I was shocked to the bone,” says Anastasia, a Lassa survivor from Abakaliki.

Anastasia is a survivor of Lassa fever. (October, 2021).

“It came like malaria, and I bought anti-malaria drugs from a pharmaceutical shop. When I took it for three days, I was still sick. In fact, my situation was worse.”

Difficult to diagnose

Anastasia had Lassa fever, but thankfully she was able to access the anti-viral treatment she needed to recover. However, her first assumption that she had malaria is a common one.

Health promoters creating awareness about lassa fever in the community. (October, 2021).

Challenging to manage

Lassa fever symptoms are very similar to malaria, making it difficult to diagnose.

Many medical staff don’t have specific training on the detection and treatment of Lassa.

Creating awareness about the disease to stop the spread and reduce the stigma towards patients of the disease. (October, 2021).

As a result, patients often only receive an accurate diagnosis once they are at a severe stage of the disease, which is more challenging to manage.

Goal to tackle root causes

Since the beginning of our operations on Lassa fever in partnership with the MoH in Ebonyi state, the goal has been to tackle the root causes of Lassa fever and its broad spread impact on infected individuals.

“I contracted Lassa fever in February 2021. When I tested positive, I was shocked to the bone” 

[anastasia][lassa survivor from abakaliki]

A trial of a rapid diagnostic testing (RDT) for Lassa fever is currently at the core of research at AE-FUTHA. If an RDT proves effective, it could help drastically reduce the waiting time for results from a laboratory test.

Rapid diagnostic testing trial

“We want to see if the RDT could be a substitute in the management or diagnosis of Lassa fever,” says Okereke Michael Uche , MSF medical doctor.

Health promoters creating awareness about lassa fever in the community. (October, 2021).

“Timing is important; a patient moves from a mild condition to severe. And when it becomes severe, it is more difficult to manage,” he says.

Fight against Lassa fever

To ensure continued progress in the fight against Lassa fever, our teams keep a continuous provision of drugs, lab supplies, and personal protective equipment (PPE).

Awareness being created about Lassa fever. (October, 2021).

We also train AE-FUTHA staff on clinical management and Infection Prevention Control (IPC) for Lassa fever.

And to alleviate the psychological impact of the viral disease on infected or suspected patients and their families, mental health support is also provided.

Lassa fever stigma

Stigma can be a heavy burden on Lassa fever patients. Some people have lost their jobs, been chased out of their own community, or even lost relationships because they were associated with Lassa fever, as a patient or a caregiver.

We work to educate and sensitise communities through a team of health promotors.

The team organises community meetings, health talks and awareness campaigns in villages and rural areas across seven local government areas in Ebonyi state.

Behavioural change

“The purpose of all this is to foster behavioural change; we talk to people one at a time to ensure that everybody gets the message and understands the causes and cures for Lassa,” says Benjamin Uzoma, MSF health promotion supervisor.

 

Lassa fever Health Promotion Activity. (October, 2021).

Five survivors of Lassa fever also work alongside the health promotion teams to educate people about the disease directly from their own experiences with it.

“What I did was to share my story,” says Anastasia, a Lassa fever survivor.

we talk to people one at a time to ensure that everybody gets the message and understands the causes and cures for Lassa,” 

[benjamin uzoma][msf health promotion supervisor]

“This helps other people know that Lassa fever is real, but that it can be cured if you are diagnosed and treated on time,” says Anastasia.

“Lassa fever is a serious disease, but when the medical community and the communities are fully engaged and empowered with accurate information, then not only is the stigma reduced – but we can get people timely access to care and they can recover more quickly,” says Luigi Sportelli, MSF project medical referent.

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